NSW Biobank Registry

The Office for Health and Medical Research, NSW Health Pathology, the Cancer Institute NSW and the NSW Cancer Biobanking Stakeholder Network conducted a survey of organisations regarding their biobank infrastructure. The NSW Biobank Registry includes information on collections of 44 biobanks that responded to the survey providing information.

Please get in touch if you wish to have your biobank added to the Registry, or for listed biobanks, your contact details updated.

BioBankContactPhoneEmailTypeWebsite
NSW Health Statewide BiobankSimon Cooper+ 612 49204140NSWPATH-Biobanking@health.nsw.gov.auCancer; Population; Hybrid; Other diseaseshttps://biobank.health.nsw.gov.au
Asbestos Diseases Research Institute (ADRI)Kan Chen02) 9767 9811kan.chen@sydney.edu.auCancerhttps://adri.org.au
Australian Breast Cancer Tissue Bank (ABCTB)Dr Mythily Sachchithananthan(02) 8267 3701wmi.abctb@sydney.edu.auCancerhttps://www.abctb.org.au
Australian Genomics and Clinical Outcomes of Glioma (AGOG)Dr Kerrie McDonald(02) 9385 1471k.mcdonald@unsw.edu.auCancerhttps://agogbio.unsw.edu.au
Australian Pancreatic Cancer Genome InitiativeMs Amber Johns(02) 9355 5835a.johns@garvan.org.auCancerhttps://www.pancreaticcancer.net.au
Cancer Council NSW BiobankLeighna Carmichael(02) 9334 1992leighnac@nswcc.org.auCancerhttps://www.cancercouncil.com.au/?s=biobank
Children's Cancer Institute Australia (CCIA)Ms Kiri Collins(02) 9385 2085kcollins@ccia.org.auCancerhttps://ccia.org.au/
Concord Colorectal Cancer Tissue BankClinical Associate ProfessorÿCharles Chan(02) 9767 6634charles.chan3@sswahs.nsw.gov.auCancer
Garvan Institute of Medical Research & Royal Prince Alfred Lung Cancer BiobankAssociate Professor Maija Kohonen-Corish(02) 9355 5819m.corish@garvan.org.auCancerhttps://www.health.nsw.gov.au/ohmr/biobankregistry/Pages/biobanktype-cancer.aspx
Gynaecological Oncology Biobank at Westmead (GynBiobank)Ms Catherine Kennedy(02) 9845 7306c.kennedy@sydney.edu.auCancerhttps://www.westmeadinstitute.org.au/research/core-technologies/biobanks
Hunter Cancer Biobank (HCB) & Mark Hughes Foundation Brain Cancer BiobankMs Sarah Nielsen(02) 4042 0775HNELHD-cancerbiobank@hnehealth.nsw.gov.auCancerhttps://www.biobank.org.au
Kolling Institute Tumour BanksMs Ussha Pillai(02) 9926 4771ussha.pillai@sydney.edu.auCancerhttps://www.kollinginstitute.org.au
Melanoma Institute Australia Biospecimen Bank for Melanoma ResearchValerie Jakrot(02) 8637 2777valerie.jakrot@melanoma.org.auCancerhttps://www.melanoma.org.au/research/biospecimen-bank.html
Melanoma Tissue Collections of the Melanoma Research Laboratory, University of NewcastleProfessor Xu Dong Zhang(02) 4921 7828xu.zhang@newcastle.edu.auCancer
Royal Prince Alfred Head and Neck Tissue BankDr Guy Lyons(02) 9036 6314guy.lyons@sydney.edu.auCancer
Royal Prince Alfred Neuropathology Tumour and Tissue Bank (RPA-TTB)Clinical Associate Professor Michael Buckland (Director), Dr Kimberley Kaufman (Manager)(02) 9114 1148 (02) 9351 0846michael.buckland@sydney.edu.au, kim.kaufman@sydney.edu.auCancerhttps://www.slhd.nsw.gov.au/RPA/Neuropathology/default.html
CONCERT Biobank Centre for Oncology Education and Research TranslationDr Nicole Caixeiro(02) 8738 4727nicole.caixeiro@sswahs.nsw.gov.auCancerhttps://inghaminstitute.org.au/where-we-work/concert-biobank/
St Vincent's Campus Prostate Cancer Group (SVCPCG)Ms Anne-Maree Haynes(02) 9355 5786a.haynes@garvan.org.auCancerwww.apccbioresource.org.au/research/st_vincents.html
Sydney Breast Cancer FoundationProfessor Sandra O'Toole(02) 9515 7182s.otoole@garvan.org.auCancer
The Children's Hospital at Westmead Tumour BankAssociate Professor Dan Catchpoole(02) 9845 1205daniel.catchpoole@health.nsw.gov.auCancerhttps://www.schn.health.nsw.gov.au/health-professionals/statewide-laboratory-services/tumour-bank
University of NSW Lowy BiorepositoryDr Anusha Hettiaratchi(02) 9385 1493biorepository@unsw.edu.auCancerhttps://powcs.med.unsw.edu.au/research/adult-cancer-program/services-resources/biorepository
Australian Schizophrenia Research Bank (ASRB)Kate Johnston0413 000 507k.johnston@neura.edu.auOther diseaseshttps://www.neura.edu.au/discovery-portal/asrb/
Craniofacial DatabaseAssociate Professor Michael Buckley(02) 9382 9125michael.buckley@health.nsw.gov.auOther diseaseshttps://www.seals.health.nsw.gov.au
Kids Heart Research DNAProfessor David Winlaw and Gillian Blue(02) 9845 2345david.winlaw@health.nsw.gov.au, gillian.blue@health.nsw.gov.auOther diseaseshttps://www.heartcentreforchildren.com.au/dna-bank.html
Multiple Sclerosis Research Australia Brain Bank (MSRABB)Dr Antony Harding(02) 9351 0943 1300 672 265antony.harding@sydney.edu.au, msrabrainbank@msra.org.auOther diseaseshttps://msbrainbank.org.au
NHMRC Diabetes Cardiovascular BiobankProfessor Anthony Keech(02) 9562 5000tony@ctc.usyd.edu.auOther diseasesÿwww.ctc.usyd.edu.au
NSW Tissue Resource Centre (NSWTRC)Professor Jillian Kril(02) 9036 7118jillian.kril@sydney.edu.auOther diseaseshttps://sydney.edu.au/medicine/pathology/btrc/index.php
Orthopaedic Cell & Tissue BankDr Aaron Schindeler02 9845 1451aaron.schindeler@sydney.edu.auOther diseases
Sydney Brain BankDr Claire Shepherd(02) 9399 1690shepherd@neura.edu.auOther diseaseswww.neura.edu.au/scientific-facility/sydneybrainbank/
Dermatology Bio-Specimen BankDr Emily Fuller, Dr Marina Ali02 8833 3096efuller@scfa.edu.au; marina.ali@sydney.edu.auOther diseases https://www.wslhd.health.nsw.gov.au/Westmead-Hospital/Dermatology-Westmead
Cancer Council NSW BiobankMrs Verity Hodgkinson(02) 9334 1992verityh@nswcc.org.auPopulationhttps://www.cancercouncil.com.au/?s=biobank
Concord Health and Ageing in Men Project CHAMP, USYDProfessor Robert Cumming(02) 9036 6407robert.cumming@sydney.edu.auPopulationhttps://sydney.edu.au/research/opportunities/opportunities/48
Dermatopathology Department Skin & Cancer Foundation Australia (SCFA)Mr Neil Catlett(02) 8833 3026ncatlett@scfa.edu.auHybridhttps://www.scfa.edu.au
St Vincent's Centre for Applied Medical Research BiobankMr Philip Cunningham and Ms Kate Merlin(02) 8382 4900p.cunningham@amr.org.au, k.mcghie@amr.org.auHybridhttps://www.amr.org.au/about-us/our-facilities/st-vincents-biobank
45andUp BiobankMartin McNamara(02) 9188 9500martin.mcnamara@saxinstitute.org.auHybridhttps://www.saxinstitute.org.au/our-work/45-up-study/
Adolescence Medicine (Biobank)Tina Cunningham(02) 98451400/9845 2507tina.cunningham@health.nsw.gov.auPopulation https://www.kidsresearch.org.au/research/clinical-sciences/academic-department-adolescent-medicine
Australian Arthritis BiobankProf Lyn March and Prof Chris Jackson(02) 94631890, (02) 9463 1891lyn.march@sydney.edu.auArthritis https://a3bc.com.au
Australian Ocular BiobankJane Tregloggen(02) 9382 7288mona.ghabcha@health.nsw.gov.auOcular Tissue https://www.seslhd.health.nsw.gov.au/NSW_Organ_Donation/biobank.asp
Biospecimen Collections of Cancer Trial Co-operative Groups Clinical Trials (NHMRC Clinical Trials Centre)Dr Sonia Yip(02) 9562 5345sonia.yip@ctc.usyd.edu.auCancerhttps://www.ctc.usyd.edu.au
Brain Cancer Biobanking AustraliaDr Mythily Sachchithananthan(02) 8036 5244mythily.sachchithananthan@ctc.usyd.edu.auCancerwww.bcba.org.au
Cell Bank AustraliaElsa Moy(02) 8865 2850cellbank@cmri.org.au, emoy@cmri.org.auCancer; Other diseases https://www.cellbankaustralia.com/
Cellular TherapiesDr Leighton Clancy(02) 86273770, (02) 98459873leighton.clancy@sydney.edu.auCancer, Other diseases https://www.westmead.org.au/facilities-and-services/biobanking
Childhood Diabetes BiobankProf Maria Craig(02) 98453907maria.craig@health.nsw.gov.auDiabetes https://www.kidsresearch.org.au/research/chronic-diseases-childhood/institute-endocrinology-and-diabetes
Children's Cancer Institute Tumour BankToby Trahair(02) 9382 2970TMcCorquodale@ccia.unsw.edu.auCancer
CIDM (Fungal Collections)A/Prof Julie Djordjevic(02) 8627 3420julianne.djordjevic@sydney.edu.auFungal https://www.westmead.org.au/facilities-and-services/biobanking
CIDM Bacterial Culture Collection (Bacteria)Dr Andrew Ginn(02) 8623420andrew.ginn@sydney.edu.auMicrobial https://www.westmead.org.au/facilities-and-services/biobanking
Dermatology BiobankDunja Ana VekicDunja.Vekic@health.nsw.gov.auOther diseases
Diabetes Biobank (CTRR)Prof Wayne Hawthorne(02) 8627 3503wayne.hawthorne@sydney.edu.auDiabetes https://www.westmead.org.au/facilities-and-services/biobanking
Five Elements Organoid BankDr Guang Yang / Prof. David James(02) 8627 1968wychem1988@yeah.netGeneral
Genetic Repositories AustraliaProfessor Peter Schofield(02) 9399 1746gra.notify@neura.edu.auOther diseases; Populationwww.neura.edu.au/GRA
Heart BiobankA/Prof James Chong(02) 8627 3672, (02) 98456795c/o sindhu igoor or james.chong@sydney.edu.auCardiologyhttps://www.westmead.org.au/facilities-and-services/biobanking
Hunter Cancer Research Alliance (HCRA)Cassandra Griffin, Biobank Manager(02) 49217460Cassandra.griffin@newcastle.edu.auCancerhttps://www.hcra.com.au
Lupus BiobankDr Ming-Wei Linÿ(02) 88906933ming-wei.lin@sydney.edu.auImmunologyhttps://www.westmead.org.au/facilities-and-services/biobanking
Melanoma Genetic Epidemiology CollectionsHelen Schmid(02) 86273786genetic.epi@sydney.edu.auCancerhttps://www.westmeadinstitute.org.au/research/research-divisions/cancer/melanoma-research-group/overview
Multiple Sclerosis BiobankPrudance Gatt(02) 86273607prudence.gatt@sydney.edu.auImmunologyhttps://www.westmead.org.au/facilities-and-services/biobanking
Muscle BiobankLeigh Waddell(02) 98451455leigh.waddell@health.nsw.gov.auNeurologyÿhttps://www.inmr.com.au
Muscle BiobankLisa Kay,Dr Jenny Shannon, Dr Peter Flynn & Prof Anna de Fazio(02) 473 44054ÿlisa.kay@sydney.edu.auCancer
Nepean Intensive Care BiobankChristina Whitehead, Professor Stephen Huang047341388/0410960263christina.whitehead@health.nsw.gov.auGeneral
Neuroimaging DatabaseDr Kristi Griffiths(02) 86273301/86273318kristi.griffiths@sydney.edu.auNeuroimaging https://www.westmead.org.au/facilities-and-services/biobanking
Newborn Screening BiobankA/Prof Veronica Wiley(02) 98453256ÿveronica.wiley@health.nsw.gov.auAntenatal screening https://www.schn.health.nsw.gov.au/health-professionals/statewide-laboratory-services/newborn-screening-program
Newcastle HMRI / John Hunter Hospital: Digestive Health BiobankProfessor Nick Talley(02) 4921 5855nicholas.talley@newcastle.edu.auOther diseases
Steve and Lynette Waugh Brain Tumour BankA/Prof Kerrie McDonald02 9385 1471k.mcdonald@unsw.edu.auCancer
Stroke Biobank (HMRI) / Uni of NewcastlePrajwal Gyawali / Professor Neil Spratt(02) 4921 6171prajwal.gyawali@newcastle.edu.au / neil.spratt@newcastle.edu.auOther diseases https://www.newcastle.edu.au/research-and-innovation/centre/prcsbi/about-us
The Westmead Medical Mycology Culture CollectionProf Wieland Meyer(02) 8627 3430wieland.meyer@sydney.edu.auOther diseases https://www.westmeadinstitute.org.au/research/core-technologies/biobanks
Vision DatabaseDr Andrew White0459649034andrew.white@sydney.edu.auOccular
Westmead Oral Health BiobankDr Shanika Nanayakkara(02) 88908766shanika.nanayakkara@sydney.edu.auOther diseases https://www.westmead.org.au/facilities-and-services/biobanking

Biobanking Resources

The following websites are useful reference points and contain information in relation to biobanking.

International Society for Biological and Environmental Repositories (ISBER)
ISBER is a global organisation which creates opportunities for sharing ideas and innovations in biobanking and harmonises approaches to evolving challenges for biological and environmental repositories.

National Health Medical Research Council (NHMRC)
The National Health and Medical Research Council (NHMRC) is Australia’s leading expert body promoting the development and maintenance of public and individual health standards.

Research Ethics and Governance 
All research involving humans conducted within the NSW public health system must be ethically and scientifically reviewed and approved by a Human Research Ethics Committee (HREC) in accordance with the National Statement (2007)

Centre for Health Record Linkage (CHeReL)
The Centre for Health Record Linkage (CHeReL) is dedicated to helping researchers, planners and policy makers access linked health data about people in the NSW and ACT. We host a secure, high performing data linkage system – one of the largest of its kind in Australia – which facilitates high-quality research and health policy decisions.

NSW Research Hubs: Promoting collaboration and translation of research
The NSW Health and Medical Research Hub Strategy a strong emphasis on the role of Research Hubs in promoting collaboration. Hubs coordinate the efforts of geographically proximate medical research institutes, local health districts and primary care providers, universities, industry and philanthropic organisations.

National Association of Testing Authorities, Australia (NATA)
The National Association of Testing Authorities, Australia (NATA) provides a foundation for confidence in Australia’s calibration, testing, and inspection activities. NATA technical auditing (accreditation) also underpins the certification of a range of products and services. NATA adds value to thousands of such services in business, industry and government, both in Australia and internationally.

Cancer Biobanking NSW
A site for the biobanking community to share biobank details, events and resources.

Brain Cancer Biobanking Australia
Brain Cancer Biobanking Australia (BCBA) is a virtual biobank hub established to provide researchers easy access to the amount, quality and type of tissue and associated data they need to accelerate both paediatric and adult translational brain cancer research.

Canadian Tumour Repository Network (CTRNet)
The Canadian Tumour Repository Network was formed in 2004 to foster studies into the determinants of cancer, to better understand cancer prevention and early detection, and to improve the prediction of drug response and the identification of new drug targets.

The UK Biobank
The UK Biobank is a major national health resource, and a registered charity in its own right, with the aim of improving the prevention, diagnosis and treatment of a wide range of serious and life-threatening illnesses – including cancer, heart diseases, stroke, diabetes, arthritis, osteoporosis, eye disorders, depression and forms of dementia.

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