The Office for Health and Medical Research, NSW Health Pathology, the Cancer Institute NSW and the NSW Cancer Biobanking Stakeholder Network conducted a survey of organisations regarding their biobank infrastructure. The NSW Biobank Registry includes information on collections of 44 biobanks that responded to the survey providing information.
Please get in touch if you wish to have your biobank added to the Registry, or for listed biobanks, your contact details updated.
|NSW Health Statewide Biobank||Simon Cooper||+ 612 49204140||NSWPATH-Biobanking@health.nsw.gov.au||Cancer; Population; Hybrid; Other diseases||https://biobank.health.nsw.gov.au|
|Asbestos Diseases Research Institute (ADRI)||Kan Chen||02) 9767 email@example.com||Cancer||https://adri.org.au|
|Australian Breast Cancer Tissue Bank (ABCTB)||Dr Mythily Sachchithananthan||(02) 8267 firstname.lastname@example.org||Cancer||https://www.abctb.org.au|
|Australian Genomics and Clinical Outcomes of Glioma (AGOG)||Dr Kerrie McDonald||(02) 9385 email@example.com||Cancer||https://agogbio.unsw.edu.au|
|Australian Pancreatic Cancer Genome Initiative||Ms Amber Johns||(02) 9355 firstname.lastname@example.org||Cancer||https://www.pancreaticcancer.net.au|
|Cancer Council NSW Biobank||Leighna Carmichael||(02) 9334 email@example.com||Cancer||https://www.cancercouncil.com.au/?s=biobank|
|Children's Cancer Institute Australia (CCIA)||Ms Kiri Collins||(02) 9385 firstname.lastname@example.org||Cancer||https://ccia.org.au/|
|Concord Colorectal Cancer Tissue Bank||Clinical Associate ProfessorÿCharles Chan||(02) 9767 email@example.com||Cancer|
|Garvan Institute of Medical Research & Royal Prince Alfred Lung Cancer Biobank||Associate Professor Maija Kohonen-Corish||(02) 9355 firstname.lastname@example.org||Cancer||https://www.health.nsw.gov.au/ohmr/biobankregistry/Pages/biobanktype-cancer.aspx|
|Gynaecological Oncology Biobank at Westmead (GynBiobank)||Ms Catherine Kennedy||(02) 9845 email@example.com||Cancer||https://www.westmeadinstitute.org.au/research/core-technologies/biobanks|
|Hunter Cancer Biobank (HCB) & Mark Hughes Foundation Brain Cancer Biobank||Ms Sarah Nielsen||(02) 4042 0775||HNELHDfirstname.lastname@example.org||Cancer||https://www.biobank.org.au|
|Kolling Institute Tumour Banks||Ms Ussha Pillai||(02) 9926 email@example.com||Cancer||https://www.kollinginstitute.org.au|
|Melanoma Institute Australia Biospecimen Bank for Melanoma Research||Valerie Jakrot||(02) 8637 firstname.lastname@example.org||Cancer||https://www.melanoma.org.au/research/biospecimen-bank.html|
|Melanoma Tissue Collections of the Melanoma Research Laboratory, University of Newcastle||Professor Xu Dong Zhang||(02) 4921 email@example.com||Cancer|
|Royal Prince Alfred Head and Neck Tissue Bank||Dr Guy Lyons||(02) 9036 firstname.lastname@example.org||Cancer|
|Royal Prince Alfred Neuropathology Tumour and Tissue Bank (RPA-TTB)||Clinical Associate Professor Michael Buckland (Director), Dr Kimberley Kaufman (Manager)||(02) 9114 1148 (02) 9351 email@example.com, firstname.lastname@example.org||Cancer||https://www.slhd.nsw.gov.au/RPA/Neuropathology/default.html|
|CONCERT Biobank Centre for Oncology Education and Research Translation||Dr Nicole Caixeiro||(02) 8738 email@example.com||Cancer||https://inghaminstitute.org.au/where-we-work/concert-biobank/|
|St Vincent's Campus Prostate Cancer Group (SVCPCG)||Ms Anne-Maree Haynes||(02) 9355 firstname.lastname@example.org||Cancer||www.apccbioresource.org.au/research/st_vincents.html|
|Sydney Breast Cancer Foundation||Professor Sandra O'Toole||(02) 9515 email@example.com||Cancer|
|The Children's Hospital at Westmead Tumour Bank||Associate Professor Dan Catchpoole||(02) 9845 firstname.lastname@example.org||Cancer||https://www.schn.health.nsw.gov.au/health-professionals/statewide-laboratory-services/tumour-bank|
|University of NSW Lowy Biorepository||Dr Anusha Hettiaratchi||(02) 9385 email@example.com||Cancer||https://powcs.med.unsw.edu.au/research/adult-cancer-program/services-resources/biorepository|
|Australian Schizophrenia Research Bank (ASRB)||Kate Johnston||0413 000 firstname.lastname@example.org||Other diseases||https://www.neura.edu.au/discovery-portal/asrb/|
|Craniofacial Database||Associate Professor Michael Buckley||(02) 9382 email@example.com||Other diseases||https://www.seals.health.nsw.gov.au|
|Kids Heart Research DNA||Professor David Winlaw and Gillian Blue||(02) 9845 firstname.lastname@example.org, email@example.com||Other diseases||https://www.heartcentreforchildren.com.au/dna-bank.html|
|Multiple Sclerosis Research Australia Brain Bank (MSRABB)||Dr Antony Harding||(02) 9351 0943 1300 672 firstname.lastname@example.org, email@example.com||Other diseases||https://msbrainbank.org.au|
|NHMRC Diabetes Cardiovascular Biobank||Professor Anthony Keech||(02) 9562 firstname.lastname@example.org||Other diseases||ÿwww.ctc.usyd.edu.au|
|NSW Tissue Resource Centre (NSWTRC)||Professor Jillian Kril||(02) 9036 email@example.com||Other diseases||https://sydney.edu.au/medicine/pathology/btrc/index.php|
|Orthopaedic Cell & Tissue Bank||Dr Aaron Schindeler||02 9845 firstname.lastname@example.org||Other diseases|
|Sydney Brain Bank||Dr Claire Shepherd||(02) 9399 email@example.com||Other diseases||www.neura.edu.au/scientific-facility/sydneybrainbank/|
|Dermatology Bio-Specimen Bank||Dr Emily Fuller, Dr Marina Ali||02 8833 firstname.lastname@example.org; email@example.com||Other diseases||https://www.wslhd.health.nsw.gov.au/Westmead-Hospital/Dermatology-Westmead|
|Cancer Council NSW Biobank||Mrs Verity Hodgkinson||(02) 9334 firstname.lastname@example.org||Population||https://www.cancercouncil.com.au/?s=biobank|
|Concord Health and Ageing in Men Project CHAMP, USYD||Professor Robert Cumming||(02) 9036 email@example.com||Population||https://sydney.edu.au/research/opportunities/opportunities/48|
|Dermatopathology Department Skin & Cancer Foundation Australia (SCFA)||Mr Neil Catlett||(02) 8833 firstname.lastname@example.org||Hybrid||https://www.scfa.edu.au|
|St Vincent's Centre for Applied Medical Research Biobank||Mr Philip Cunningham and Ms Kate Merlin||(02) 8382 email@example.com, firstname.lastname@example.org||Hybrid||https://www.amr.org.au/about-us/our-facilities/st-vincents-biobank|
|45andUp Biobank||Martin McNamara||(02) 9188 email@example.com||Hybrid||https://www.saxinstitute.org.au/our-work/45-up-study/|
|Adolescence Medicine (Biobank)||Tina Cunningham||(02) 98451400/9845 firstname.lastname@example.org||Population||https://www.kidsresearch.org.au/research/clinical-sciences/academic-department-adolescent-medicine|
|Australian Arthritis Biobank||Prof Lyn March and Prof Chris Jackson||(02) 94631890, (02) 9463 email@example.com||Arthritis||https://a3bc.com.au|
|Australian Ocular Biobank||Jane Tregloggen||(02) 9382 firstname.lastname@example.org||Ocular Tissue||https://www.seslhd.health.nsw.gov.au/NSW_Organ_Donation/biobank.asp|
|Biospecimen Collections of Cancer Trial Co-operative Groups Clinical Trials (NHMRC Clinical Trials Centre)||Dr Sonia Yip||(02) 9562 email@example.com||Cancer||https://www.ctc.usyd.edu.au|
|Brain Cancer Biobanking Australia||Dr Mythily Sachchithananthan||(02) 8036 firstname.lastname@example.org||Cancer||www.bcba.org.au|
|Cell Bank Australia||Elsa Moy||(02) 8865 email@example.com, firstname.lastname@example.org||Cancer; Other diseases||https://www.cellbankaustralia.com/|
|Cellular Therapies||Dr Leighton Clancy||(02) 86273770, (02) email@example.com||Cancer, Other diseases||https://www.westmead.org.au/facilities-and-services/biobanking|
|Childhood Diabetes Biobank||Prof Maria Craig||(02) firstname.lastname@example.org||Diabetes||https://www.kidsresearch.org.au/research/chronic-diseases-childhood/institute-endocrinology-and-diabetes|
|Children's Cancer Institute Tumour Bank||Toby Trahair||(02) 9382 2970||TMcCorquodale@ccia.unsw.edu.au||Cancer|
|CIDM (Fungal Collections)||A/Prof Julie Djordjevic||(02) 8627 email@example.com||Fungal||https://www.westmead.org.au/facilities-and-services/biobanking|
|CIDM Bacterial Culture Collection (Bacteria)||Dr Andrew Ginn||(02) firstname.lastname@example.org||Microbial||https://www.westmead.org.au/facilities-and-services/biobanking|
|Dermatology Biobank||Dunja Ana Vekic||Dunja.Vekic@health.nsw.gov.au||Other diseases|
|Diabetes Biobank (CTRR)||Prof Wayne Hawthorne||(02) 8627 email@example.com||Diabetes||https://www.westmead.org.au/facilities-and-services/biobanking|
|Five Elements Organoid Bank||Dr Guang Yang / Prof. David James||(02) 8627 firstname.lastname@example.org||General|
|Genetic Repositories Australia||Professor Peter Schofield||(02) 9399 email@example.com||Other diseases; Population||www.neura.edu.au/GRA|
|Heart Biobank||A/Prof James Chong||(02) 8627 3672, (02) 98456795||c/o sindhu igoor or firstname.lastname@example.org||Cardiology||https://www.westmead.org.au/facilities-and-services/biobanking|
|Hunter Cancer Research Alliance (HCRA)||Cassandra Griffin, Biobank Manager||(02) 49217460||Cassandra.email@example.com||Cancer||https://www.hcra.com.au|
|Lupus Biobank||Dr Ming-Wei Lin||ÿ(02) firstname.lastname@example.org||Immunology||https://www.westmead.org.au/facilities-and-services/biobanking|
|Melanoma Genetic Epidemiology Collections||Helen Schmid||(02) email@example.com||Cancer||https://www.westmeadinstitute.org.au/research/research-divisions/cancer/melanoma-research-group/overview|
|Multiple Sclerosis Biobank||Prudance Gatt||(02) firstname.lastname@example.org||Immunology||https://www.westmead.org.au/facilities-and-services/biobanking|
|Muscle Biobank||Leigh Waddell||(02) email@example.com||Neurology||ÿhttps://www.inmr.com.au|
|Muscle Biobank||Lisa Kay,Dr Jenny Shannon, Dr Peter Flynn & Prof Anna de Fazio||(02) 473 44054ÿfirstname.lastname@example.org||Cancer|
|Nepean Intensive Care Biobank||Christina Whitehead, Professor Stephen Huangemail@example.com||General|
|Neuroimaging Database||Dr Kristi Griffiths||(02) firstname.lastname@example.org||Neuroimaging||https://www.westmead.org.au/facilities-and-services/biobanking|
|Newborn Screening Biobank||A/Prof Veronica Wiley||(02) 98453256ÿemail@example.com||Antenatal screening||https://www.schn.health.nsw.gov.au/health-professionals/statewide-laboratory-services/newborn-screening-program|
|Newcastle HMRI / John Hunter Hospital: Digestive Health Biobank||Professor Nick Talley||(02) 4921 firstname.lastname@example.org||Other diseases|
|Steve and Lynette Waugh Brain Tumour Bank||A/Prof Kerrie McDonald||02 9385 email@example.com||Cancer|
|Stroke Biobank (HMRI) / Uni of Newcastle||Prajwal Gyawali / Professor Neil Spratt||(02) 4921 firstname.lastname@example.org / email@example.com||Other diseases||https://www.newcastle.edu.au/research-and-innovation/centre/prcsbi/about-us|
|The Westmead Medical Mycology Culture Collection||Prof Wieland Meyer||(02) 8627 firstname.lastname@example.org||Other diseases||https://www.westmeadinstitute.org.au/research/core-technologies/biobanks|
|Vision Database||Dr Andrew Whiteemail@example.com||Occular|
|Westmead Oral Health Biobank||Dr Shanika Nanayakkara||(02) firstname.lastname@example.org||Other diseases||https://www.westmead.org.au/facilities-and-services/biobanking|
The following websites are useful reference points and contain information in relation to biobanking.
International Society for Biological and Environmental Repositories (ISBER)
ISBER is a global organisation which creates opportunities for sharing ideas and innovations in biobanking and harmonises approaches to evolving challenges for biological and environmental repositories.
National Health Medical Research Council (NHMRC)
The National Health and Medical Research Council (NHMRC) is Australia’s leading expert body promoting the development and maintenance of public and individual health standards.
Research Ethics and Governance
All research involving humans conducted within the NSW public health system must be ethically and scientifically reviewed and approved by a Human Research Ethics Committee (HREC) in accordance with the National Statement (2007)
Centre for Health Record Linkage (CHeReL)
The Centre for Health Record Linkage (CHeReL) is dedicated to helping researchers, planners and policy makers access linked health data about people in the NSW and ACT. We host a secure, high performing data linkage system – one of the largest of its kind in Australia – which facilitates high-quality research and health policy decisions.
NSW Research Hubs: Promoting collaboration and translation of research
The NSW Health and Medical Research Hub Strategy a strong emphasis on the role of Research Hubs in promoting collaboration. Hubs coordinate the efforts of geographically proximate medical research institutes, local health districts and primary care providers, universities, industry and philanthropic organisations.
National Association of Testing Authorities, Australia (NATA)
The National Association of Testing Authorities, Australia (NATA) provides a foundation for confidence in Australia’s calibration, testing, and inspection activities. NATA technical auditing (accreditation) also underpins the certification of a range of products and services. NATA adds value to thousands of such services in business, industry and government, both in Australia and internationally.
Cancer Biobanking NSW
A site for the biobanking community to share biobank details, events and resources.
Brain Cancer Biobanking Australia
Brain Cancer Biobanking Australia (BCBA) is a virtual biobank hub established to provide researchers easy access to the amount, quality and type of tissue and associated data they need to accelerate both paediatric and adult translational brain cancer research.
Canadian Tumour Repository Network (CTRNet)
The Canadian Tumour Repository Network was formed in 2004 to foster studies into the determinants of cancer, to better understand cancer prevention and early detection, and to improve the prediction of drug response and the identification of new drug targets.
The UK Biobank
The UK Biobank is a major national health resource, and a registered charity in its own right, with the aim of improving the prevention, diagnosis and treatment of a wide range of serious and life-threatening illnesses – including cancer, heart diseases, stroke, diabetes, arthritis, osteoporosis, eye disorders, depression and forms of dementia.