Return of Incidental findings

The NSWHSB process for returning Incidental Findings that are found in the process of testing biospecimens for research.

An Incidental Finding is a research finding that has a health implication for a biobank participant or their genetic relatives.

Consenting to biobanking means participants are consenting to receiving any Incidental Finding that has been found by the researcher during the course of their research. Only findings that are significant, clinically actionable and confirmed will be returned to the participant.

Return of Incidental Findings Guidance
This document outlines the process for the return of Incidental Findings that are found in the process of testing biospecimens for research. It is relevant for all collections that are under the custodianship of NSW Health Statewide Biobank (NSWHSB).

Return of Incidental Findings Form
Following research confirmation of validity and accuracy, the researcher must notify the NSWHSB by completing and emailing the Return of Incidental Findings Form.

Ethically Defensible Plan (EDP) Guideline
Guidance to researchers who access biospecimen collections housed in the NSW Health Statewide Biobank about how to develop an EDP.

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