Resources

for researchers and biobankers

NSWHSB Seminar Series talks

Dynamic near real-time clinical data linkage and management for biobanks and translational research.
Associate Professor Kevin Spring, Ingham Institute & Western Sydney University, Liverpool. June 2020.

Why eConsent is a major advance for ‘informed’ consent.
Professor Nik Zeps, Epworth HealthCare. July 2020

Exploring new ways to manage consent in genomic research and other large-scale data sharing research initiatives.
Dr Matilda Haas, a Program Coordinator from Australian Genomics. July 2020

Biobanks pay dividends – prevention of cardiovascular disease via Mendelian randomisation.
Associate Professor David Sullivan, Royal Prince Alfred Hospital and NSW Health Pathology. August 2020.

45 and Up Study: research opportunities.
Dr Kerrin Bleicher, Director Research Assets, Sax Institute. September 2020

Health Economics Analysis of Cancer Biobank Costs and Outputs in NSW.
Ms Amanda Rush, PhD Student. September 2020.

Clinical Trials: needed, astray, retrievable.
Associate Professor Craig Gedye, Medical Oncologist Calvary Mater Newcastle and Clinical Research Director NSWHSB. October 2020.

My Research Results: An evidence-based process enabling research participants access to clinically actionable genetic information. Mary-Anne Young and Dr Amanda Willis, Kinghorn Centre for Clinical Genomics, Garvan Institute of Medical Research. March 2020.

See our events page for upcoming Seminar Series talks.

Useful websites

International Society for Biological and Environmental Repositories (ISBER)
ISBER is a global organisation which creates opportunities for sharing ideas and innovations in biobanking and harmonises approaches to evolving challenges for biological and environmental repositories.

Australasian Biospecimen Network Association (ABNA)
The Australasian Biospecimen Network Association (ABNA) provides an enduring association of biobanking professionals

National Health Medical Research Council (NHMRC)
The National Health and Medical Research Council (NHMRC) is Australia’s leading expert body promoting the development and maintenance of public and individual health standards.

The Office for Health and Medical Research (OHMR) 
The NSW Office for Health and Medical Research is focused on providing researchers, clinicians, managers and policy makers with the tools they need to translate research into innovative policy and practice to create healthier communities and deliver better patient care.

Ethical and Scientific Review
All research involving humans conducted within the NSW public health system must be ethically and scientifically reviewed and approved by a Human Research Ethics Committee (HREC) in accordance with the National Statement (2007)

NSW Research Hubs
The NSW Health and Medical Research Hub Strategy a strong emphasis on the role of Research Hubs in promoting collaboration. Hubs coordinate the efforts of geographically proximate medical research institutes, local health districts and primary care providers, universities, industry and philanthropic organisations.

Centre for Health Record Linkage (CHeReL)
The Centre for Health Record Linkage (CHeReL) is dedicated to helping researchers, planners and policy makers access linked health data about people in the NSW and ACT. We host a secure, high performing data linkage system – one of the largest of its kind in Australia – which facilitates high-quality research and health policy decisions.

Brain Cancer Biobanking Australia
Brain Cancer Biobanking Australia (BCBA) is a virtual biobank hub established to provide researchers easy access to the amount, quality and type of tissue and associated data they need to accelerate both paediatric and adult translational brain cancer research.

National Association of Testing Authorities, Australia (NATA)
The National Association of Testing Authorities, Australia (NATA) provides a foundation for confidence in Australia’s calibration, testing, and inspection activities. NATA technical auditing (accreditation) also underpins the certification of a range of products and services. NATA adds value to thousands of such services in business, industry and government, both in Australia and internationally.

Office of Biobank Education and Research (OBER)
The Office of Biobank Education and Research (OBER) is an integral part of the UBC Department of Pathology and Laboratory Medicine. They provide support for biobanks through education on biospecimen science and communication of best practices and standards for biobanking, in order to advance translational health research.

Canadian Tumour Repository Network (CTRNet)
The Canadian Tumour Repository Network was formed in 2004 to foster studies into the determinants of cancer, to better understand cancer prevention and early detection, and to improve the prediction of drug response and the identification of new drug targets.

The UK Biobank
The UK Biobank is a major national health resource, and a registered charity in its own right, with the aim of improving the prevention, diagnosis and treatment of a wide range of serious and life-threatening illnesses – including cancer, heart diseases, stroke, diabetes, arthritis, osteoporosis, eye disorders, depression and forms of dementia.

Office for Biorepositories and Biospecimen Research Branch (BBRB)
This National Cancer Institute website provides in-depth evidence-based information on biobanking.

BBMRI-ERIC
BBMRI-ERIC is a European research infrastructure for biobanking. They offer quality management services, support with ethical, legal and societal issues, and a number of online tools and software solutions for biobankers and researchers.

Biospecimen Research Database (BRD) SOP Compendiums
This BRD compendium contains representative SOPs from sources that are either a U.S. government agency or possess a centralised biobank, with the intent to facilitate comparisons of SOP format across organisations.

Guidelines

NHMRC National Statement on Ethical Conduct
The National Statement on Ethical Conduct in Human Research (National Statement 2007, updated 2018) consists of a series of guidelines made in accordance with the National Health and Medical Research Council Act 1992. The purpose of this National Statement is to promote ethically good human research

ISBER Best Practices
ISBER Best Practices presents the most effective practices for the management of biological and environmental specimen collections and repositories.

Journals

Biopreservation and Biobanking Journal
Biopreservation and Biobanking (BIO) is the first journal to provide a unifying forum for the peer-reviewed communication of recent advances in the emerging and evolving field of biospecimen procurement, processing, preservation and banking, distribution, and use.

Biomarker Insights
Biomarker Insights is an international, peer-reviewed, open access journal that supports the field of biomarker research.

Publications

Publications – Biospecimen Quality
Cancer Biobanks NSW provides links to notable publications that have been published in the area of biospecimen quality.

Publications – Biobanking
Cancer Biobanks NSW provides links to notable biobanking publications.

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